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The following publications are part of our research program aimed at understanding the impact of COVID-19 on the mental health of service providers in the developmental sector.
The Azrieli Adult Neurodevelopmental Centre has been investigating the mental health and well-being of leaders in the developmental services sector since 2020, conducting annual surveys. This report presents findings from a survey conducted in August 2023, involving 230 agency leaders across Ontario. It examines their work circumstances, the stressors faced by both leaders and individuals with developmental disabilities, and their mental health status. The results reveal ongoing challenges within the developmental services sector, with 23% of leaders reporting moderate to severe distress. Additionally, leaders highlighted the persistent impacts of the COVID-19 pandemic on individuals with developmental disabilities, echoing findings from our 2023 survey of Direct Support Professionals (DSPs). These results underscore the need for tailored wellness supports for agency leaders, alongside interventions addressing broader organizational and systemic issues such as culture, workload, and compensation.
Since the summer of 2020, the Azrieli Adult Neurodevelopmental Centre has been investigating the mental health impacts of COVID-19 on Direct Support Professionals (DSPs) in Ontario through annual surveys. The 2023 survey findings indicate that DSPs continue to report similar levels of psychological distress as in prior years, underscoring the need to invest in the health and wellbeing of DSPs as well as the people with developmental disabilities they support. The report offers recommendations for potential next steps to action.
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This report provides an update on the mental health of DSPs two and a half years into the pandemic. DSPs from across Canada completed an anonymous survey between June and July 2022; this report includes the findings from 805 DSPs from across Ontario. Key concerns identified by DSPs included the ongoing impact of pandemic on the mental health and well-being of staff and people with developmental disabilities. Attention to the larger structural and system-level stressors causing ongoing staff distress, in addition to individual and organizational capacity building is needed to effectively address the mental health needs of all members of this community.
In November 2021, 260 agency leaders (e.g., executive directors, supervisors, managers, human resource specialists) from across Ontario completed a survey examining their mental health needs during COVID-19. Similar to the DSP survey results, agency leaders reported high levels of stress at work and concerns about the staff and people with developmental disabilities they support. Importantly, just over a quarter of participants (28%) indicated moderate to high levels of psychological distress. The report summarizes leaders’ suggestions for what would be most helpful to them moving forward.
In June 2021, 462 DSPs completed a follow-up survey to identify how they were currently coping. Similar to a year prior, both DSPs and people with developmental disabilities continued to be seriously impacted by living and working through the pandemic. A greater proportion of DSPs reported experiencing moderate to severe distress; were more likely working in settings with COVID-19 exposures; and reported clients with developmental disabilities experiencing increased physical and mental health concerns.
In July 2020, researchers from the Azrieli Adult Neurodevelopmental Centre at CAMH surveyed 868 direct support professionals (DSPs) from across Ontario on the impact of COVID-19 on their mental health. Survey results reveal that one in four DSPs reported moderate to severe psychological distress. Furthermore, DSPs, and the people with developmental disabilities they support, were affected in diverse and varied ways by COVID-19 and related public health measures (e.g., changing roles, loss of routines). Respondents offered their suggestions to better support DSPs going forward, including recognizing the work of DSPs as essential, and that mental health services and supports for DSPs and people with developmental disabilities be increased.
Lunsky, Y., Bobbette, N., Selick, A., Jiwa, M.I. (2021). “The doctor will see you now”: Direct support professionals’ perspectives on supporting adults with intellectual and developmental disabilities accessing health care during COVID-19. Disability and Health Journal, 14(3), 101066 https://doi.org/10.1016/j.dhjo.2021.
An online questionnaire was distributed to 942 direct support professionals (DSPs) in Canada examining the experiences of DSPs in supporting adults with intellectual and developmental disabilities attending virtual and in-person health care during COVID-19. Findings provide insight into the experience of health care for this population during COVID-19 and can be used to support direct support professionals and adults with intellectual and developmental disabilities to adapt to safe, supportive and comprehensive virtual and in-person health care during the pandemic and beyond.
Lunsky Y., Bobbette N., Chacra M.A., Wang W., Zhao H., Thomson K., Hamdani, Y., (2021). Predictors of worker mental health in intellectual disability services during COVID-19. Journal of Applied Research in Intellectual Disabilities, 34(6), 1655-1660. https://doi.org/10.1111/jar.12892.
This paper reports on the results of a survey examining the variables associated with emotional distress of workers supporting adults with intellectual disabilities in Canada during COVID-19. Survey respondents included 838 full- and part-time workers in the developmental services sector. One in four workers reported moderate to severe emotional distress, one in three met screening criteria for anxiety and one in five met criteria for depression. Study findings highlight the significant stresses reported by staff working in this sector and the need to develop proactive and responsive policies and strategies to acknowledge the essential work they provide.
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Your gift will be triple matched until midnight on December 31–give now to make better mental health care a reality for all.
