This study will develop measures to assess dementia care in the community. The study will review existing indicators and engage people living with dementia, caregivers, and healthcare and service providers to identify key priorities of dementia care. Two groups will participate: an online Delphi Group (DG) completing two surveys and an in-person Nominal Group (NG) for focus group discussion. These identified measures will help monitor care, identify gaps, and promote equity.
Eligibility Criteria
The participant must meet all of the inclusion criteria to eligible for the DG group portion of this research study:
- Understand and able to read, write and communicate in English
- Have access to computer/tablet/smartphone and email
- Experience with PLWD either personally as PLWD, a caregiver to PLWD, a healthcare or service provider, researcher, or decision-maker.
- Aged 18 or above
The participant must meet all of the inclusion criteria to eligible for the NG group portion of this research study:
- Understand and able to read, write and communicate in English
- Able to attend an in-person group discussion at CAMH.
- Either a person living with dementia or a caregiver to a person living with dementia.
- Aged 18 or above
What does the study involve?
- Number of contacts: 1-3 in-person visits
- Compensation offered? Yes
Investigator(s): Dr. Dallas Seitz
Full Study Title: Measuring and Improving the Quality of Community-Based Dementia Care
Contact Information:
E-mail: dementia.quality@camh.ca
REB number: 2025/086
REB Approval Expiry Date: October 21, 2026
PLEASE NOTE:
- Research staff cannot give medical advice over the phone or via email.
- If you have specific questions regarding your health care, please contact your family physician.
- We regret that not everyone screened for a study will be eligible to participate
- For more information about other treatment options for mental illness or addiction offered by CAMH, visit www.camh.ca or call 416-535-8501.