For as long as she can remember, Jessica Muamba has taken on a caregiving role.
As the first-born daughter of immigrant parents, she took on responsibility early in life, helping her mother after her parents' divorce and supporting her younger siblings. For Jessica, stepping in never felt like a choice but a responsibility. “In a first-born daughter’s mind,” she says, “you simply do it because you have to.”
From the beginning, her sister Joyce was at the centre of that care. Born severely premature, Joyce has lived with lifelong challenges that left lasting effects on both her cognitive and motor skills. For Jessica, the experience revealed another layer of struggle. She recognized the stigma around mental illness in her own family that is still common in many immigrant households. “In a lot of African communities, there is a huge spiritual aspect to mental health,” she explains. “They try to pray it away, but families need to see people with similar belief systems who integrated medical care and saw positive outcomes.”
In 2018, Joyce was in crisis. She stopped sleeping, ran away from home and began hallucinating. One night, police found her wandering downtown Toronto and brought her to a hospital that transferred her to CAMH. She was immediately admitted to the Early Psychosis Unit.
After six weeks of care, testing and trial and error with medications, Joyce's psychosis finally began to stabilize. CAMH staff worked persistently until they found the right medication, and that persistence made all the difference for Joyce. After many family conversations—and after seeing the positive impact that care had on Joyce’s stability and recovery—her mother came to embrace it as part of the solution. “Maybe the professional help was the answered prayer,” Jessica says. “After that, she became Joyce’s biggest advocate.”
Even with high-quality clinical care, Jessica saw the gaps. At one point, staff were unfamiliar with how to support Joyce’s braids and didn’t recognize the meticulous care and maintenance they require.